this new insurance company isn't such a great plan but we're working hard with the DRs to make some stuff work for him.
He's having some minor surgery in the morning but with the risk of the anesthesia and the neurological apnea theres a high risk that he may NOT wake up. Since it's minor surgery to clip his very bad tongue tie we can't put it off any longer.. he hasn't had any signs of a seizure in the past couple weeks which is good news! The anesthesiologist is going to give him a very short acting type of general that he should only be out for 6-8 minutes before starting to wake up so hope the ENT & the vascular surgeons both do plan on working very quickly and can coordinate it so they can do their magic in the allotted time!
I told them that at 6 minutes I'll be pacing the floor outside the OR door and at 8 minutes if they don't call me back to be there for him when he starts coming too I'll be a raven lunatic!
After hearing about Senator Ted Kennedy which our family has known , met and lived by them as a kid has had 1 seizure and has a cancerous brain tumor, and my son has dyplasia of the brain which they can't get to for a biopsy because of the length amount of time being under anesthesia and a strong possible he'd never wake up though the procedure they won't attempt a biopsy at this point. People wonder why I'm such a basket case, hovering and babying my little man....
I can't help but be worried out of my mind!!
We recently created a carepage for him that your welcome to visit, post to the message board and send virtual gifts
here's the link and it's free.
I have one for my illnesses too but have to update and will post the link another time...
My husband is starting to realize the severity of whats going on......
He's actually being nice now.......
Will post as soon as possible afterwards.....
So now I have a house full of kids, he has 5 friends over right now, I want to make sure he has a good day! YIKES! (I think I'm going to need some motrin!!)
Also have to prepare for our annual Memorial BBQ this weekend too..
If anyone knows of a way to have extra time in a day please let me know!
Showing posts with label sick surgery. Show all posts
Showing posts with label sick surgery. Show all posts
Wednesday, May 21, 2008
Thursday, May 01, 2008
Life Changes!!
well alot has been going on I'll be brief right now.
My husband and his work decided on changing insurance and over the past month we've learned alot of the treatments aren't' covered for my son (nor myself). Been denied for alot of other services, he was off his meds for a short time but the drs are working on other, alternatives to get by until they can figure out another way and herbals have been added in the meantime....
Both of us were scheduled for upcoming surgeries his minor but I've had to cancel mine and my DRS aren't sure of how to proceed with me before I become critical ill they have to do something or wait until then.
My husband has informed me out of the blue that he is moving out and has decided on a quick divorce...Thanks for the support and will try to keep updating the best I can.
Anyone interested in buying Celion Dion tickets? I paid $240 for 2 of them
My husband and his work decided on changing insurance and over the past month we've learned alot of the treatments aren't' covered for my son (nor myself). Been denied for alot of other services, he was off his meds for a short time but the drs are working on other, alternatives to get by until they can figure out another way and herbals have been added in the meantime....
Both of us were scheduled for upcoming surgeries his minor but I've had to cancel mine and my DRS aren't sure of how to proceed with me before I become critical ill they have to do something or wait until then.
My husband has informed me out of the blue that he is moving out and has decided on a quick divorce...Thanks for the support and will try to keep updating the best I can.
Anyone interested in buying Celion Dion tickets? I paid $240 for 2 of them
Labels:
about me,
family home life,
sick surgery
Saturday, March 15, 2008
Updates to my Etsy Shop and more!
We've all been home with the flu, only 1 trip to the hospital....of course with my son....
He has and still is running VERY HIGH TEMPS!! Needless to say I haven't been sleeping to much or all that well, sore achy body, my bones are cold! I feel a sore throat coming. croupy cough...ewww!
With all the sicknesses I've had some quiet time to make some mini sock earrings.

Very addicting habit with those small leftover pieces that can't work for a square on my blanket....of course to match my socks too..;o))

there a few pairs up for sale now $20 each pair included with FREE plastic easy grip stoppers

also my husband & I had to re-evaluate on how where going to keep up and pay for the continued treatments and stuff regarding my son's medical care! So we started on on line business thats great, flexible and will work into me continuing to stay home to care for the kids and take care of all my sons medical expenses while he continues to work 2 full time jobs.....
We were invited to take at close look at this opportunity and it works! We enjoy sharing the business with people and showing them how it works too.
I understand it's not for everyone and so many can really benefit form it without even knowing of doing anything.
Our goals is for him not have to work all the hours and have the extra income at the same time within our first year.
Of course we also invite everyone to help us advertise our online website
Http://www.TravelsYourWay.com
Please do keep in mind
you don't have to purchase travel, not everyone travels, but click on the extras and check out so much more
Ever purchase a new or pre-owned vehicle?? Please feel free to ask away and get a free code to print out and take to your dealership with you for extra savings, concert tickets, your local attractions, spa visits, car rentals, sport events, plays, musicals, golfing, skiing, send flowers though the site too, and so much more!
If you'd like to see how this program works and how you can benefit too leave me your email address and I can send you more info and a short video to watch. You would also get a ton of tax savings even the join fee too is tax deductible! Fully accredited and lots of perks too!
100% of ALL our profits from both my etsy shop and our business site all go to help benefit our son!
He has and still is running VERY HIGH TEMPS!! Needless to say I haven't been sleeping to much or all that well, sore achy body, my bones are cold! I feel a sore throat coming. croupy cough...ewww!
With all the sicknesses I've had some quiet time to make some mini sock earrings.
Very addicting habit with those small leftover pieces that can't work for a square on my blanket....of course to match my socks too..;o))
there a few pairs up for sale now $20 each pair included with FREE plastic easy grip stoppers
also my husband & I had to re-evaluate on how where going to keep up and pay for the continued treatments and stuff regarding my son's medical care! So we started on on line business thats great, flexible and will work into me continuing to stay home to care for the kids and take care of all my sons medical expenses while he continues to work 2 full time jobs.....
We were invited to take at close look at this opportunity and it works! We enjoy sharing the business with people and showing them how it works too.
I understand it's not for everyone and so many can really benefit form it without even knowing of doing anything.
Our goals is for him not have to work all the hours and have the extra income at the same time within our first year.
Of course we also invite everyone to help us advertise our online website
Http://www.TravelsYourWay.com
Please do keep in mind
you don't have to purchase travel, not everyone travels, but click on the extras and check out so much more
Ever purchase a new or pre-owned vehicle?? Please feel free to ask away and get a free code to print out and take to your dealership with you for extra savings, concert tickets, your local attractions, spa visits, car rentals, sport events, plays, musicals, golfing, skiing, send flowers though the site too, and so much more!
If you'd like to see how this program works and how you can benefit too leave me your email address and I can send you more info and a short video to watch. You would also get a ton of tax savings even the join fee too is tax deductible! Fully accredited and lots of perks too!
100% of ALL our profits from both my etsy shop and our business site all go to help benefit our son!
Labels:
about me,
family home life,
FO,
sick surgery,
updates
Monday, December 10, 2007
Sock Wars & updates
Sorry it took so long to get the sock wars photos up and updates. It's only taken me 2-3 days to do this post...

there thick & comfey

First year I could get my son to get close enough to Santa for a picture

We've had alot happened in the past week or so now .
My son woke up one night and was scared, couldn't speak or get any air in to breathe.
I tried everything I had for emergency medicines waiting for the DR to call and he was getting worse so I didn't wait to ran him to the closest local ER.
They took us in immediately when they saw us walk in and me carrying him.
They first found out they couldn't see down his throat it was closed and swollen. Not tonsils either. Stenosis of his upper airway. Low stats, heart rate under 50 and this wasn't an asthma attack!!
kept him on monitors with low O2s, etc. gave him high doses of steriods to get the swelling down right away,etc.
They did a sleep observation overnight and found out he's having clusters of mini stokes, causing seizures and lesions on the lower part of his brain. The lesions are not sending the proper signals to his body to tell him he needs to breathe when he's sleeping. We're so very proud of him, being such a big brave boy through everything!

They also gave him a couple new diagnosis's. The said he has centralized apneas and RLS which is rare in adults let alone children. Which need to get treated immediately or corrected up to the neurologists. First they need to do a surgery tomorrow morning to help his breathing issues first (of a couple or so) and fix the stenosis of his trek. Then afterwards healing time before the next route.
The DR thinks that all of this is contributing to his learning issues and behaviors issues and his IEP at school. They still think he may be somewhat high end Autism.
I had to get a seizure monitor for home to monitor his o2 and movements during the night.
So I haven't be online much nor will I be in the coming weeks.
he's out of school for a while hopefully he'll be ok to go back in Jan.
I can't enough concentrate long enough t relax and do any knitting or anything really.

We're not even thinking of the holidays either.
They did have their holiday pageant and my son was so scared and looked as though he was going to cry on the stage!! Beforehand he was singing Jingle bells and so excited...(he doesn't do well in crowds, just doesn't like crowds or loud noises and music, he never has)

then The principal and vice principal took my kids to a holiday concert with a couple of their friends this past weekend. Kinda expensive to.. the ticket stubs were $45 per ticket! YIKES! (my son wouldn't get in the pictures at the concert hall downtown)
I'm just glad he got to participate in some holiday festivies. He's going to miss a few but its ok as long as he gets well soon!
Thanks for the notes and sorry it took me so long to send out updates!
Thanks so much for all the thoughts & prayers & for all the support!
Hope everyone enjoys the holiday season!
Hope to be back soon! (will check emails but can't promise it'll be everyday so please be patient on hearing back from me
there thick & comfey
First year I could get my son to get close enough to Santa for a picture
We've had alot happened in the past week or so now .
My son woke up one night and was scared, couldn't speak or get any air in to breathe.
I tried everything I had for emergency medicines waiting for the DR to call and he was getting worse so I didn't wait to ran him to the closest local ER.
They took us in immediately when they saw us walk in and me carrying him.
They first found out they couldn't see down his throat it was closed and swollen. Not tonsils either. Stenosis of his upper airway. Low stats, heart rate under 50 and this wasn't an asthma attack!!
kept him on monitors with low O2s, etc. gave him high doses of steriods to get the swelling down right away,etc.
They did a sleep observation overnight and found out he's having clusters of mini stokes, causing seizures and lesions on the lower part of his brain. The lesions are not sending the proper signals to his body to tell him he needs to breathe when he's sleeping. We're so very proud of him, being such a big brave boy through everything!
They also gave him a couple new diagnosis's. The said he has centralized apneas and RLS which is rare in adults let alone children. Which need to get treated immediately or corrected up to the neurologists. First they need to do a surgery tomorrow morning to help his breathing issues first (of a couple or so) and fix the stenosis of his trek. Then afterwards healing time before the next route.
The DR thinks that all of this is contributing to his learning issues and behaviors issues and his IEP at school. They still think he may be somewhat high end Autism.
I had to get a seizure monitor for home to monitor his o2 and movements during the night.
So I haven't be online much nor will I be in the coming weeks.
he's out of school for a while hopefully he'll be ok to go back in Jan.
I can't enough concentrate long enough t relax and do any knitting or anything really.
We're not even thinking of the holidays either.
They did have their holiday pageant and my son was so scared and looked as though he was going to cry on the stage!! Beforehand he was singing Jingle bells and so excited...(he doesn't do well in crowds, just doesn't like crowds or loud noises and music, he never has)
then The principal and vice principal took my kids to a holiday concert with a couple of their friends this past weekend. Kinda expensive to.. the ticket stubs were $45 per ticket! YIKES! (my son wouldn't get in the pictures at the concert hall downtown)
I'm just glad he got to participate in some holiday festivies. He's going to miss a few but its ok as long as he gets well soon!
Thanks for the notes and sorry it took me so long to send out updates!
Thanks so much for all the thoughts & prayers & for all the support!
Hope everyone enjoys the holiday season!
Hope to be back soon! (will check emails but can't promise it'll be everyday so please be patient on hearing back from me
Labels:
family home life,
FO,
sick surgery,
swaps,
updates
Tuesday, July 03, 2007
Been very ill Update
very frustrated.
I had a lover biopsy when I had my gall bladder out a couple weeks ago.. The bx has been back for over a week and I keep getting a bunch of BS from the DRs offices.. First I called to find out my results and they had a very uninformative resident call me who wouldn't give me much info except
we'd like to have you go to the liver transplant center and see them.
I asked very specifically about different illness, diseases cancer, etc. he wouldn't say no negative or positive??? well why not?
So I hang up and call the center for an appointment and they said I'd be lucky to get in by Oct. Ok no problem
Then minutes later they call me and said the DR decided to open some time for you in July can you come up then?? well yeah!! I kinda need my liver.
Then a couple days ago the surgeons office calls me back to change my follow up appointment and ask about setting up a date for 5 pieces of my liver to be taken from various areas to confirm diagnosis?? WHAT?? What diagnosis? oh not sure until we can confirm the extent of the damage??? What diagnosis and damage??
Why and what can they be leaving out.. I refused to set up any more surgeries, treatments or anything until someone tells me what this fishing expedition is all about and what they want to confirm and see what??
I thought I had some rights to my care?
and before any tells me to go elsewhere.. I am going to see the head of the liver center transplant surgeon in Boston.. worlds renown and actually all my regular DRs and specialists are in the same hospitals.....but right now I'm not feeling very confident and my recovering hasn't gone all that well so far. Already been back in the hospital over night over the weekend... Not fun at all!
Right now the DRs is currently keeping on morphine the end of the week will be 3 weeks... I know this isn't normal..continued low grade temps.. I keep being told I'm having a gall bladder attack now?? They took the darn thing out??
Just so nauseated, ill, a lump in my throat that wont' go away! errrr! So very frustrated
Am going to have a busy month especially the next couple weeks also some appointments with my son too. He may have to come off his meds, it's making him a very angry mean kid.. We're looking into a service dog for him with the epilepsy & behavior issues but they want $9500 fee...plus we have to go to training for a couple weeks... which is to be expected but still.. Fundraising for that kind of money for one person isn't easy and still keep up with other stuff....Way behind of medical payments...Just trying to stay a float with medicines and living expenses...I spoke with the school and the principal is going to hire someone for him to stay with in school, classes and stuff starting September. So glad the school is working with us regarding him being in a regular school and at the same time trying not to label him.... One less thing off my mind for the moment
Now trying to juggle appointments in order of importance?? Kids first but I need my liver too....hmmmm errrrr!
Haver had a few short moments to spin a little makes me feel a little better & relax a bit...phewwww! Have to have some fiber in my life right?! LOL
I had a lover biopsy when I had my gall bladder out a couple weeks ago.. The bx has been back for over a week and I keep getting a bunch of BS from the DRs offices.. First I called to find out my results and they had a very uninformative resident call me who wouldn't give me much info except
we'd like to have you go to the liver transplant center and see them.
I asked very specifically about different illness, diseases cancer, etc. he wouldn't say no negative or positive??? well why not?
So I hang up and call the center for an appointment and they said I'd be lucky to get in by Oct. Ok no problem
Then minutes later they call me and said the DR decided to open some time for you in July can you come up then?? well yeah!! I kinda need my liver.
Then a couple days ago the surgeons office calls me back to change my follow up appointment and ask about setting up a date for 5 pieces of my liver to be taken from various areas to confirm diagnosis?? WHAT?? What diagnosis? oh not sure until we can confirm the extent of the damage??? What diagnosis and damage??
Why and what can they be leaving out.. I refused to set up any more surgeries, treatments or anything until someone tells me what this fishing expedition is all about and what they want to confirm and see what??
I thought I had some rights to my care?
and before any tells me to go elsewhere.. I am going to see the head of the liver center transplant surgeon in Boston.. worlds renown and actually all my regular DRs and specialists are in the same hospitals.....but right now I'm not feeling very confident and my recovering hasn't gone all that well so far. Already been back in the hospital over night over the weekend... Not fun at all!
Right now the DRs is currently keeping on morphine the end of the week will be 3 weeks... I know this isn't normal..continued low grade temps.. I keep being told I'm having a gall bladder attack now?? They took the darn thing out??
Just so nauseated, ill, a lump in my throat that wont' go away! errrr! So very frustrated
Am going to have a busy month especially the next couple weeks also some appointments with my son too. He may have to come off his meds, it's making him a very angry mean kid.. We're looking into a service dog for him with the epilepsy & behavior issues but they want $9500 fee...plus we have to go to training for a couple weeks... which is to be expected but still.. Fundraising for that kind of money for one person isn't easy and still keep up with other stuff....Way behind of medical payments...Just trying to stay a float with medicines and living expenses...I spoke with the school and the principal is going to hire someone for him to stay with in school, classes and stuff starting September. So glad the school is working with us regarding him being in a regular school and at the same time trying not to label him.... One less thing off my mind for the moment
Now trying to juggle appointments in order of importance?? Kids first but I need my liver too....hmmmm errrrr!
Haver had a few short moments to spin a little makes me feel a little better & relax a bit...phewwww! Have to have some fiber in my life right?! LOL
Monday, June 18, 2007
Updates and in need of some help
I've been in bed, hospital and couch for over a week now recovering....had a very tough time with procedures found out I have to have a full follow up I didn't pass the cardiology screening nor tests, EKG & ECHO.... so to a cardiologist to see if I qualify for a pacemaker (like I really need any more medical issues, I have enough to last an entire extended family for a lifetime!!) and when they took my liver out later in the week they had to take a few biopsies of stuff.. liver not looking to good....Hopefully will have those results by the end of this week.... Crossing my fingers.. in the meantime between kids needs, my own and resting I've been busy knitting again.. Boy does it feel GOOD! A little painful but nevertheless GREAT to be knitting again. Makes me feel better and not so depressed...I think the pain meds help me knit faster...heehee
Here's one pair of socks. Pattern is from the new book "Friendly Sock Compilation, Vol II: A-Z and more".
16 author/designers: Debra Barker, Debra Chinn, Marcia Cordell, Michelle Fischer, Bonnie Franz, Sheron Goldin, Kathy Nehrenz, Joan Macleod, Claudia Tietze, Jeanie Townsend, Linda Walsh, Charlton Wilbur, Nancy Wild, KyleAnn Williams, Becky Yoder, and me, Laura Andersson (editor).
Book 1 is $24 and 4.50 priority ship; Book 2 is
$28 and 4.50 priority ship.
Book 2 is about 140 pages, with 40+ patterns & articles from 16 different designers you know. These are FULL-SIZE, books, not skimpy!
As well, there are helpful articles on topics such as how to use handspun in that new pattern you bought!
Books have plastic covers for protection over cardstock covers, spiral binding to lay flat, and full color. there's also a pocket for your notes and etc!
Pricing: Book 1, $24 and $4.50 priority ship
Book 2, $28 and $4.50 priority ship.
Special offer: if you order both books together, then you can
have free shipping (a $9 value) or 20% off book 1.
PS paypal to, drlaura@siriusknitting.com
(btw I have some patterns in it, I was published for the first time this year!!)
the pattern that I have been working on here is called Big Yellow Taxi designed by Becky Yoder
which I only changed the colors for July.....thought it looked pretty neat....

So I weighed out my yarn and all to make sure I had enough but opps.. Guess what not! Hoping someone can help me out here maybe possibly.....pretty please, my toes will be very cold....and another shade/color didn't look right.....

now............
I'm in immediate desperately seeking if anyone happens to have a few
yards in their sock yarn leftovers of
Louet Gems Pearl in Cherry Red?
Dyelot 80.1112-8 but NOT necessary just need a few yards to finish up
a toe is all..
I love leftovers if you don't need them , can work out arrangements
for them please email me off list. I'm on the east coast but don't
care where it comes from ......
Then I'll be back to my recovery! promise.....yeah right! Seriously yes, back to the couch for a nap!
Here's one pair of socks. Pattern is from the new book "Friendly Sock Compilation, Vol II: A-Z and more".
16 author/designers: Debra Barker, Debra Chinn, Marcia Cordell, Michelle Fischer, Bonnie Franz, Sheron Goldin, Kathy Nehrenz, Joan Macleod, Claudia Tietze, Jeanie Townsend, Linda Walsh, Charlton Wilbur, Nancy Wild, KyleAnn Williams, Becky Yoder, and me, Laura Andersson (editor).
Book 1 is $24 and 4.50 priority ship; Book 2 is
$28 and 4.50 priority ship.
Book 2 is about 140 pages, with 40+ patterns & articles from 16 different designers you know. These are FULL-SIZE, books, not skimpy!
As well, there are helpful articles on topics such as how to use handspun in that new pattern you bought!
Books have plastic covers for protection over cardstock covers, spiral binding to lay flat, and full color. there's also a pocket for your notes and etc!
Pricing: Book 1, $24 and $4.50 priority ship
Book 2, $28 and $4.50 priority ship.
Special offer: if you order both books together, then you can
have free shipping (a $9 value) or 20% off book 1.
PS paypal to, drlaura@siriusknitting.com
(btw I have some patterns in it, I was published for the first time this year!!)
the pattern that I have been working on here is called Big Yellow Taxi designed by Becky Yoder
which I only changed the colors for July.....thought it looked pretty neat....

So I weighed out my yarn and all to make sure I had enough but opps.. Guess what not! Hoping someone can help me out here maybe possibly.....pretty please, my toes will be very cold....and another shade/color didn't look right.....

now............
I'm in immediate desperately seeking if anyone happens to have a few
yards in their sock yarn leftovers of
Louet Gems Pearl in Cherry Red?
Dyelot 80.1112-8 but NOT necessary just need a few yards to finish up
a toe is all..
I love leftovers if you don't need them , can work out arrangements
for them please email me off list. I'm on the east coast but don't
care where it comes from ......
Then I'll be back to my recovery! promise.....yeah right! Seriously yes, back to the couch for a nap!
Friday, May 18, 2007
More updates!
Well my daughters recovery at home didn't go as planned neither has my son's illnesses, they both ended up back admitted to the hospitals, of course a huge inconvenience too at 2 different hospitals one is our normal pediatricians admitting hospital and the surgeon at a different one of course, nothing in my life can be so simple....
I had to spend time at both places because of course both cry for Mommy but when I'm there they cry for Daddy. That was fun!! NOT!!!
When my daughter got sent home were were so excited how she was doing and insisted on taking her home before we could see the DR because that'd be another day or 2... phewww! They got a hold of the DR and I spoke with him so I was able to do so... Thank goodness! Well it couldn't go as planned of course.. On our way home coming off the highway off the ramp I was at a stop sign because of oncoming traffic and a very young girl rear ended us!!! Ohh lucky us...
A few small dings on the car and because I have a fairly new car 2 years old this year.... It has those locking seat belts that when you have your foot on the brake they lock!! Well of course they did their job but at the same time gave me multiple bruise immediately! The downfall is there no play in them so you don't' go flying but they HURT! So after exchanging information and stuff, called my husband who wanted me to call the police. I couldn't put my daughter through any more trauma of the police showing up with ambulances for us, that would mean flat boards & neck braces and a ride to the hospital that would frighten the witts out of her especially if we couldn't be together.. She wasn't hurt as bad because the should strap she put across her chest instead because it digs into her neck.. She had bounced back into the seat and was stiff against the seat scared out of her mind asking me what had happened!
I told here we were hit by another car an accident and not to move until mommy checked her out.. When she did gracefully.. She's so good! She had some redness and was very sore... If she didn't complain of her neck I most likely would of not gone tot he hospital. The girl who hit us was so worried especially after finding out I had a young child in the car with me.. She kept apologizing up and down. She meant to slam on the brake and punched the gas instead of break to slow down on the off ramp!! Geezzz I had to think fast here I have a teenager who drives.. She was of course upset and I didn't want to send her off driving in that state of mind.. I checked her and her car made sure the hood could open and everything was in working order.. Told her not to worry to much thats why they call them accidents, a police car drove by us and she started jumping up & down to flag him to stop.. Of course not , not around here...I'm mean no one is committing murder of something... I did call them on my way to the hospital and they said to go online to get accident reports and drop one off that we didn't need a car.. So much for there job titles to SERVE AND PROTECT!!! They forget to care about the serve part I guess there to busy cruising around and parking to read the daily papers...Who knows.....Whole other subject there...
When arriving at the hospital and finding out we had the accident, of course stretchers and neck braces ... My daughter started freaking out in the emergency room and refused So I told her to just lay with me on mine.... The nurses wasn't to pleased but I told her she just had a traumaticing experience and we just left about an hour ago. She looked us up in the computer and said looks like your daughter is still upstairs the paperwork hasn't gone through or updated and her record was still on the floor which we had to wait for them to retrieve those before we could be seen.. They took us in right away under the circumstances so that was good. We spent most of the night there didn't leave until well after midnight after a full range of X-Rays on me!! My daughter had 101 questions to the radiology tech's... Tooo funny!
I can't believe how many views they needed to take. They wouldn't take off the neck brace which of course was digging into the bruises from the seat belts.. OUCH!
They gave me drugs and finally took it off after finding nothing broken but lots of pulls, bruising inside/out, some swelling on the side of neck & shoulder, strains, sprains and whatever she said basically all of the above...
same with my daughter... Good things.. We can go home and sleep in our beds for a change! My daughter was just being weined off the codeine and now they said to give her some more for a few days...
After a day and half rest the appointment and follow ups have started up again. Good news she got to go back to school today! She s so happy to see her friends again at school!! I spoke with the teacher to let her know first, she expected the class to be a little disrupted by her return....
My son doesn't have structural damage which is the good news but still not much for answers and alot of I don't' knows and more tests to come ..I had a follow up with my surgeon and he wants to take my gallbladder out next week the 30th!! It's about time and a long long time coming too.. I've had so many attacks and stones sludge,infections regularly for a few years now and more recently for the past year it's not emptying and contracting properly!! So this is long overdue for sure just bad timing!! I got it scheduled into June to give me a little break with stuff and before my sons tests come up. So June 5th DH 40th birthday, pre-op for breast reduction, June 11th if scopes, lots of biopsies for colon cancer I'm a very high risk and removal for polyps... Last day of school that day too for my daughter and then June 13th is the gallbladder surgery. June 16th DH back yard party, a neighbor/friend is helping me with her DH is coming home from Cuba that week (for a couple months then has to goto Iraq) so it's a combination party. June 17th Fathers day & my son's friend's birthday party
All I can remember at the moment without looking at all my appointment cards and calender.. YIKES!! So I need the next week and half to rest up... Oh and of course the 18th summer camp starts 9-12 Mon -Thurs and so does my son's tests and specialist start too. We even need to see another neurologist/neurosurgeon as well in-between sometime...
In the meantime I'm excited about the Tea Swap 3 I signed up for... Zeneedle is my partner!! We have so much in common this will be a piece of cake....heeeheee I can have a little fun in my life this year!! YIPPIE!!
So this is the short version of my life, I'm sure I've forgot some highlights but how can one manage... I'll never know, I'm so numb it isn't even funny!
I haven't touched any knitting in so long, I sure hope I remember how to... I'm still working on my STR Hippy Crunch socks, see this is how far I got a few months ago....

I really like the colorway I just hope I can figure out where I left off in the pattern.
I had to spend time at both places because of course both cry for Mommy but when I'm there they cry for Daddy. That was fun!! NOT!!!
When my daughter got sent home were were so excited how she was doing and insisted on taking her home before we could see the DR because that'd be another day or 2... phewww! They got a hold of the DR and I spoke with him so I was able to do so... Thank goodness! Well it couldn't go as planned of course.. On our way home coming off the highway off the ramp I was at a stop sign because of oncoming traffic and a very young girl rear ended us!!! Ohh lucky us...
A few small dings on the car and because I have a fairly new car 2 years old this year.... It has those locking seat belts that when you have your foot on the brake they lock!! Well of course they did their job but at the same time gave me multiple bruise immediately! The downfall is there no play in them so you don't' go flying but they HURT! So after exchanging information and stuff, called my husband who wanted me to call the police. I couldn't put my daughter through any more trauma of the police showing up with ambulances for us, that would mean flat boards & neck braces and a ride to the hospital that would frighten the witts out of her especially if we couldn't be together.. She wasn't hurt as bad because the should strap she put across her chest instead because it digs into her neck.. She had bounced back into the seat and was stiff against the seat scared out of her mind asking me what had happened!
I told here we were hit by another car an accident and not to move until mommy checked her out.. When she did gracefully.. She's so good! She had some redness and was very sore... If she didn't complain of her neck I most likely would of not gone tot he hospital. The girl who hit us was so worried especially after finding out I had a young child in the car with me.. She kept apologizing up and down. She meant to slam on the brake and punched the gas instead of break to slow down on the off ramp!! Geezzz I had to think fast here I have a teenager who drives.. She was of course upset and I didn't want to send her off driving in that state of mind.. I checked her and her car made sure the hood could open and everything was in working order.. Told her not to worry to much thats why they call them accidents, a police car drove by us and she started jumping up & down to flag him to stop.. Of course not , not around here...I'm mean no one is committing murder of something... I did call them on my way to the hospital and they said to go online to get accident reports and drop one off that we didn't need a car.. So much for there job titles to SERVE AND PROTECT!!! They forget to care about the serve part I guess there to busy cruising around and parking to read the daily papers...Who knows.....Whole other subject there...
When arriving at the hospital and finding out we had the accident, of course stretchers and neck braces ... My daughter started freaking out in the emergency room and refused So I told her to just lay with me on mine.... The nurses wasn't to pleased but I told her she just had a traumaticing experience and we just left about an hour ago. She looked us up in the computer and said looks like your daughter is still upstairs the paperwork hasn't gone through or updated and her record was still on the floor which we had to wait for them to retrieve those before we could be seen.. They took us in right away under the circumstances so that was good. We spent most of the night there didn't leave until well after midnight after a full range of X-Rays on me!! My daughter had 101 questions to the radiology tech's... Tooo funny!
I can't believe how many views they needed to take. They wouldn't take off the neck brace which of course was digging into the bruises from the seat belts.. OUCH!
They gave me drugs and finally took it off after finding nothing broken but lots of pulls, bruising inside/out, some swelling on the side of neck & shoulder, strains, sprains and whatever she said basically all of the above...
same with my daughter... Good things.. We can go home and sleep in our beds for a change! My daughter was just being weined off the codeine and now they said to give her some more for a few days...
After a day and half rest the appointment and follow ups have started up again. Good news she got to go back to school today! She s so happy to see her friends again at school!! I spoke with the teacher to let her know first, she expected the class to be a little disrupted by her return....
My son doesn't have structural damage which is the good news but still not much for answers and alot of I don't' knows and more tests to come ..I had a follow up with my surgeon and he wants to take my gallbladder out next week the 30th!! It's about time and a long long time coming too.. I've had so many attacks and stones sludge,infections regularly for a few years now and more recently for the past year it's not emptying and contracting properly!! So this is long overdue for sure just bad timing!! I got it scheduled into June to give me a little break with stuff and before my sons tests come up. So June 5th DH 40th birthday, pre-op for breast reduction, June 11th if scopes, lots of biopsies for colon cancer I'm a very high risk and removal for polyps... Last day of school that day too for my daughter and then June 13th is the gallbladder surgery. June 16th DH back yard party, a neighbor/friend is helping me with her DH is coming home from Cuba that week (for a couple months then has to goto Iraq) so it's a combination party. June 17th Fathers day & my son's friend's birthday party
All I can remember at the moment without looking at all my appointment cards and calender.. YIKES!! So I need the next week and half to rest up... Oh and of course the 18th summer camp starts 9-12 Mon -Thurs and so does my son's tests and specialist start too. We even need to see another neurologist/neurosurgeon as well in-between sometime...
In the meantime I'm excited about the Tea Swap 3 I signed up for... Zeneedle is my partner!! We have so much in common this will be a piece of cake....heeeheee I can have a little fun in my life this year!! YIPPIE!!
So this is the short version of my life, I'm sure I've forgot some highlights but how can one manage... I'll never know, I'm so numb it isn't even funny!
I haven't touched any knitting in so long, I sure hope I remember how to... I'm still working on my STR Hippy Crunch socks, see this is how far I got a few months ago....

I really like the colorway I just hope I can figure out where I left off in the pattern.
Labels:
about me,
family home life,
sick surgery,
updates
Sunday, May 06, 2007
Some updates
First I'd like to thank everyone for their concern and the supporting comments left on the previous post. Much appreciate all the support prayers & well wishes.. Certainly am becoming a true believer of prayers!! It's sad but nice to read..Of course I'd love to call you Amy or Mandy.. I do have free call plan on my home when... When I'm home for a conversation. feel free to email me!
Well it's been a while since I've been able to sit at the computer for anything. this is breif on what my life has been, To say the very least I've been HIGHLY stressed to say the very least not sure if I'm coming or going half the time, walking around in a trance yes sir no sir state and can't even remember what yarn/fiber feel like anymore..
My sons EEG went ok. I got an immediate call from the neurologist to tell me that in fact yes he has a seizure disorder and that is effecting his entire brain more so on one side then the other. It wouldn't be surprising to see a few different types of seizures based on the findings and we're scheduled to have a MRI on Sunday Mothers May 12th to see if theirs any structural damages. He has been started on anti seizure medicine twice a day to prevent future occurances. Now the other thing is that the type of seizures he's been experience that have been witnesses by both his pediatrician and myself and a few others are not consistent with his diagnosis and the DR has no explanation or answers for this. We are going to be having a second opinion during the summer with a completely different set of eyes.
Over the past several weeks both my younger children have been blue.. My little girl got very DK blue through her wrists, hands, fingers, and my son's mouth face chin.. I almost broke down at the pediatricians office both my little ones looked like smurfs and freaking me out!! The DR kinda laughed a little to lighten up the situation for me, made me feel so much better and told me exactly why...phewwww! The feeling so helpless and seeing them like that has to be the absolutely one of the worst feelings a mother can experience... My daughters heart rate was racing because the heart had to pump more and harder to keep the flow of oxygen going though her body. She was put on antibiotics and back to school. My son on the another hand has asthma flare ups so badly that the combination of drugs hasn't' been to effective, he turned blue 3 or 4 times since my last post at least anyway that I could tell maybe more grey at times as well. He's out of the woods with the asthma still on very high dosages for a 5 y.o double of what I'd be using. Steriod shots daily has helped tremendously!! Hate them but what a wodner drug for him. only 3 hospital stays over the past month or two.. Of course he also developed phenomena & croup 3 times as well, virus's etc. Non specific viruses I can't stand..
My son has been in/out of the hospital for sometime now. He's been currently sick with all kinds of issues and difficult to treat
Now I'm questioning c-diff (because of all the different antibiotics he's been on/off the past couple months) he's been at the hospital this past week or so, my DH came to relief me yesterday afternoon and is still with him.. Thank God I needed a break, certainly LONG overdue!. Poor little guy is so petheitc too with the IV and getting blood work all the time. He's been hanging in their like a tropper though. He wants to come home so badly....He's lost about 7 pounds over the past couple weeks since not eating alot of getting his nutrition though the Ivs.
My daughter had emergency surgery on her tonsils & adnoise because in result of the racing heart rate and blueness she was quickly becoming septic because of her tonsils....The DR & OR nurses couldn't believe how LARGE they actually were could tell from examinations . they we're alot larger then golf balls they kept telling us and on the septic scale or something #2.....She's home resting comfortably, SO I had enjoyed a nice quiet evening with her last night and sleeping in my bed.. oh WOW!!! The little things you miss....!! WOOHOO! a few days ago at a different hospital about 45-an hour away from each other (of course the way) It's been difficult to be at both hospitals, since both kids keep whining for mommy all the time. and we've had my 19 y/o daughter around alot more helping so we can trade places with the little ones being alone at any given time.
another HUGE worry is the thousands of dollars that unexpectedly are needed for co-payments, scripts, not to mention the bills that will be rolling in soon!!
When my son comes home we have so many appointments to try to keep up with in between hospital visits that my life has been totally insane.. Of course my daughters follow ups. My daughters will be home for the next couple weeks from school. Still on frozen pops will be graduating to ice cream later today or tomorrow, she's still having difficulty swallowing. She's also a trooper! With our son the DR did mention that their been be a question of an un-operable brain tumor on the MRI which wouldn't be too surprising but treating systems and prevention is the key to have him live a normal kids life.. Now how is that normal?? Poor kids doesn't have a clue and doesn't remember any episodes.... I guess from the DR we should be seeing some stroke like symptoms if they last more then 2-3 minutes to get immediate medical attention.. I guess it's time to make nicey nice with the fire dept......The fire chief did tell me to make sure we're all certified in CPR & first -aid which I am and my oldest daughter is. DH learned over 20 years ago in the service and thinks thats good enough...errrr! He's also still in some denial too according to my mil. I even had the DR put everything in writing for him too...errrr! Frustrating and a whole other story another time... Last night has been the first time he was even willing to stay over at the hospital with him...

On another note I'm looking forward to joining the next Knitters Tea Swap Suzie is hosting again. (thank you for the invite) Defiantly something fun to look forward to when my life slows down and both kids are home.


Also a huge Thank you Laura for the beautiful book and letting me be part of it.. Woohoo!! Way to go Congrats on yet another wonderful sock pattern book. 'Friendly Socks A-Z Book 2' So many neat patterns....Wish I had time to knit, my needles miss me, I touch them in passing...
Well it's been a while since I've been able to sit at the computer for anything. this is breif on what my life has been, To say the very least I've been HIGHLY stressed to say the very least not sure if I'm coming or going half the time, walking around in a trance yes sir no sir state and can't even remember what yarn/fiber feel like anymore..
My sons EEG went ok. I got an immediate call from the neurologist to tell me that in fact yes he has a seizure disorder and that is effecting his entire brain more so on one side then the other. It wouldn't be surprising to see a few different types of seizures based on the findings and we're scheduled to have a MRI on Sunday Mothers May 12th to see if theirs any structural damages. He has been started on anti seizure medicine twice a day to prevent future occurances. Now the other thing is that the type of seizures he's been experience that have been witnesses by both his pediatrician and myself and a few others are not consistent with his diagnosis and the DR has no explanation or answers for this. We are going to be having a second opinion during the summer with a completely different set of eyes.
Over the past several weeks both my younger children have been blue.. My little girl got very DK blue through her wrists, hands, fingers, and my son's mouth face chin.. I almost broke down at the pediatricians office both my little ones looked like smurfs and freaking me out!! The DR kinda laughed a little to lighten up the situation for me, made me feel so much better and told me exactly why...phewwww! The feeling so helpless and seeing them like that has to be the absolutely one of the worst feelings a mother can experience... My daughters heart rate was racing because the heart had to pump more and harder to keep the flow of oxygen going though her body. She was put on antibiotics and back to school. My son on the another hand has asthma flare ups so badly that the combination of drugs hasn't' been to effective, he turned blue 3 or 4 times since my last post at least anyway that I could tell maybe more grey at times as well. He's out of the woods with the asthma still on very high dosages for a 5 y.o double of what I'd be using. Steriod shots daily has helped tremendously!! Hate them but what a wodner drug for him. only 3 hospital stays over the past month or two.. Of course he also developed phenomena & croup 3 times as well, virus's etc. Non specific viruses I can't stand..
My son has been in/out of the hospital for sometime now. He's been currently sick with all kinds of issues and difficult to treat
Now I'm questioning c-diff (because of all the different antibiotics he's been on/off the past couple months) he's been at the hospital this past week or so, my DH came to relief me yesterday afternoon and is still with him.. Thank God I needed a break, certainly LONG overdue!. Poor little guy is so petheitc too with the IV and getting blood work all the time. He's been hanging in their like a tropper though. He wants to come home so badly....He's lost about 7 pounds over the past couple weeks since not eating alot of getting his nutrition though the Ivs.
My daughter had emergency surgery on her tonsils & adnoise because in result of the racing heart rate and blueness she was quickly becoming septic because of her tonsils....The DR & OR nurses couldn't believe how LARGE they actually were could tell from examinations . they we're alot larger then golf balls they kept telling us and on the septic scale or something #2.....She's home resting comfortably, SO I had enjoyed a nice quiet evening with her last night and sleeping in my bed.. oh WOW!!! The little things you miss....!! WOOHOO! a few days ago at a different hospital about 45-an hour away from each other (of course the way) It's been difficult to be at both hospitals, since both kids keep whining for mommy all the time. and we've had my 19 y/o daughter around alot more helping so we can trade places with the little ones being alone at any given time.
another HUGE worry is the thousands of dollars that unexpectedly are needed for co-payments, scripts, not to mention the bills that will be rolling in soon!!
When my son comes home we have so many appointments to try to keep up with in between hospital visits that my life has been totally insane.. Of course my daughters follow ups. My daughters will be home for the next couple weeks from school. Still on frozen pops will be graduating to ice cream later today or tomorrow, she's still having difficulty swallowing. She's also a trooper! With our son the DR did mention that their been be a question of an un-operable brain tumor on the MRI which wouldn't be too surprising but treating systems and prevention is the key to have him live a normal kids life.. Now how is that normal?? Poor kids doesn't have a clue and doesn't remember any episodes.... I guess from the DR we should be seeing some stroke like symptoms if they last more then 2-3 minutes to get immediate medical attention.. I guess it's time to make nicey nice with the fire dept......The fire chief did tell me to make sure we're all certified in CPR & first -aid which I am and my oldest daughter is. DH learned over 20 years ago in the service and thinks thats good enough...errrr! He's also still in some denial too according to my mil. I even had the DR put everything in writing for him too...errrr! Frustrating and a whole other story another time... Last night has been the first time he was even willing to stay over at the hospital with him...

On another note I'm looking forward to joining the next Knitters Tea Swap Suzie is hosting again. (thank you for the invite) Defiantly something fun to look forward to when my life slows down and both kids are home.


Also a huge Thank you Laura for the beautiful book and letting me be part of it.. Woohoo!! Way to go Congrats on yet another wonderful sock pattern book. 'Friendly Socks A-Z Book 2' So many neat patterns....Wish I had time to knit, my needles miss me, I touch them in passing...
Labels:
about me,
family home life,
sick surgery,
updates
Tuesday, March 06, 2007
Just when you think things CAN'T get any worse!
Seriously they DO!
My baby (he's actually 5) has pneumonia, acute duress with his asthma, & conjunctivitis.... He has been
having seizures, we had no idea there some type of silent ones with no convulsions. Which we've been clueless........ the other
day he did it again while I was at the DRs office with the DR. I was getting his coat on and we were ready to leave when it happen in front of the DR, this time was bad, in my arms he became blue, he stopped breathing (coded or something the DR was saying) my little girl & myself were freaking, he was uncautious for quite sometime......the episode was 2 minutes then 10 before he woke briefly...in and out of cautiousness for a few hours groggy not knowing who we were. Once he was able to sit up and be himself again several hours later it was like it never happened, he don't' remember anything at all....
that it's been happening for quite some time, starring episodes they call
them. I've been having to wake him every 2 hours around the clock for the
past 72 hours hours. He also does this thing of ignoring people?? Age appropriate I thought he is 5 1/2 y/o.....his eyes get a little glassy (kinda like he's about to cry but doesn't teary thing going on) and he doesn't respond right away to you but snaps out of it quickly type of thing.. We had no idea anything was wrong, sometimes he'd get time outs because we've been thinking it's a behavior issue and we just haven't been able to nip it in the butt yet...tried everything reward charts too...A couple weeks ago he started pre-school part time 3 mornings a week and not once when I picked him up have I got a good repost?? Just several time outs and destruction of property?? All because of he's day dreaming or spacing out, not listening and or ignoring the teachers? and when I called to let them know he'd be out and what happened.. They said they will continue to discipline my son for these behaviors..which the DR had told me that he may not be aware of these behaviors let alone have the memory of them.. I asked for that in writing from the DR yesterday!! They don't believe thats this is the case and my son is basically just a rotten child?! I have to let that one go for the moment since my immediate concern is my son and his well-being and getting the appropriate care ASAP! EEGs, one awake and another sleep deprived, I'm suppose to keep him up all night....hmm that's be fun!
We have several appointments, consultations with 2 and possible a third special pediatric neurologist's in Boston. I've heard from 3 different one the past couple days who 'd like to see him...From my understanding this is a rare type or epileptic form of seizures in less then 4% if that I've been told.
What would anyone think?? Someone trying to get their own way? Who would've thought. The DRs has been checking in every day several times through the days since. I think he had a couple tiny episodes since..... The DR suspects this has been going on for sometime well over a year possible 2 thinking back....I feel like the worlds worst mom!! Very depressing.. Should I have noticed sooner and stopped downplaying it?
on another note
a few weeks back I was teaching a woman how to knit socks, I even RAK'd her a ton of stuff, a Debbie Bliss book with a tote full of different yarns, some needles, etc to help a new knitter get started...I've even been helping her knit trying to get her to do socks....Whats up with rumor of good things for those who give and give and give help & time to others.... Isn't it time for us to have some good things happen to us or at the very least some good karma around us... Why me?? Since it's been one horrifying thing after another
I'd even settle for some boring life time right now.
I've got a couple rubber stamps that arrived from someones home party I went to last month.. Now I think I need to sit and make some cards with my kids or maybe some me time... sounds better I think...I'm suppose to be collecting some orders from a friend... Anyone want to purchase some rubberstamps or scrapbboking stuff you can here but don't order online email me me your order
A couple weeks ago I did finish a special hat for my daughter, she told me what she wanted and we did it.. She LOVEs her new hat and even wears it too! so that in itself makes me feel better

Hard to see by the pictures but it's a purple with speckles and pink around the face opening. I sort of changed this pattern to suit my 6 y/o little girl and some stretch to last sometime for her.....

Ok back to resting before the round of medicines.. he's taking 8 at the moment. None for the seizures yet.
My baby (he's actually 5) has pneumonia, acute duress with his asthma, & conjunctivitis.... He has been
having seizures, we had no idea there some type of silent ones with no convulsions. Which we've been clueless........ the other
day he did it again while I was at the DRs office with the DR. I was getting his coat on and we were ready to leave when it happen in front of the DR, this time was bad, in my arms he became blue, he stopped breathing (coded or something the DR was saying) my little girl & myself were freaking, he was uncautious for quite sometime......the episode was 2 minutes then 10 before he woke briefly...in and out of cautiousness for a few hours groggy not knowing who we were. Once he was able to sit up and be himself again several hours later it was like it never happened, he don't' remember anything at all....
that it's been happening for quite some time, starring episodes they call
them. I've been having to wake him every 2 hours around the clock for the
past 72 hours hours. He also does this thing of ignoring people?? Age appropriate I thought he is 5 1/2 y/o.....his eyes get a little glassy (kinda like he's about to cry but doesn't teary thing going on) and he doesn't respond right away to you but snaps out of it quickly type of thing.. We had no idea anything was wrong, sometimes he'd get time outs because we've been thinking it's a behavior issue and we just haven't been able to nip it in the butt yet...tried everything reward charts too...A couple weeks ago he started pre-school part time 3 mornings a week and not once when I picked him up have I got a good repost?? Just several time outs and destruction of property?? All because of he's day dreaming or spacing out, not listening and or ignoring the teachers? and when I called to let them know he'd be out and what happened.. They said they will continue to discipline my son for these behaviors..which the DR had told me that he may not be aware of these behaviors let alone have the memory of them.. I asked for that in writing from the DR yesterday!! They don't believe thats this is the case and my son is basically just a rotten child?! I have to let that one go for the moment since my immediate concern is my son and his well-being and getting the appropriate care ASAP! EEGs, one awake and another sleep deprived, I'm suppose to keep him up all night....hmm that's be fun!
We have several appointments, consultations with 2 and possible a third special pediatric neurologist's in Boston. I've heard from 3 different one the past couple days who 'd like to see him...From my understanding this is a rare type or epileptic form of seizures in less then 4% if that I've been told.
What would anyone think?? Someone trying to get their own way? Who would've thought. The DRs has been checking in every day several times through the days since. I think he had a couple tiny episodes since..... The DR suspects this has been going on for sometime well over a year possible 2 thinking back....I feel like the worlds worst mom!! Very depressing.. Should I have noticed sooner and stopped downplaying it?
on another note
a few weeks back I was teaching a woman how to knit socks, I even RAK'd her a ton of stuff, a Debbie Bliss book with a tote full of different yarns, some needles, etc to help a new knitter get started...I've even been helping her knit trying to get her to do socks....Whats up with rumor of good things for those who give and give and give help & time to others.... Isn't it time for us to have some good things happen to us or at the very least some good karma around us... Why me?? Since it's been one horrifying thing after another
I'd even settle for some boring life time right now.
I've got a couple rubber stamps that arrived from someones home party I went to last month.. Now I think I need to sit and make some cards with my kids or maybe some me time... sounds better I think...I'm suppose to be collecting some orders from a friend... Anyone want to purchase some rubberstamps or scrapbboking stuff you can here but don't order online email me me your order
A couple weeks ago I did finish a special hat for my daughter, she told me what she wanted and we did it.. She LOVEs her new hat and even wears it too! so that in itself makes me feel better

Hard to see by the pictures but it's a purple with speckles and pink around the face opening. I sort of changed this pattern to suit my 6 y/o little girl and some stretch to last sometime for her.....

Ok back to resting before the round of medicines.. he's taking 8 at the moment. None for the seizures yet.
Thursday, December 14, 2006
Early Morning Surgery Today!
Yes AGAIN! Which I've still been having follow up appointments with the surgeon in his office for removal of continuousness of nasal blood clots and nasties! Those of you who remember I had the nastiness of all sinus surgeries mid August (this year) well, last month I had A tough time with 2 sleep studies for sleep apnea that I couldn't breathe through the masks properly!
Now 2 weeks ago I had another follow up appointment and I mentioned how I've been diagnosed with the sleep apnea and had 2 sleep labs and 2 studies with different equipment and can't seem to breathe through those masks.
Well he reads my chart as we're talking and
'Ohh I know why!!'
hmm I don't like the sounds of that!
'WE didn't finish your original surgery in August!'
'What! WHY?!' I blurted out!
'Well it was so complex and took so long, we had you under to long and weren't able to finish'
What? How?
'but we'll fix it right away for you'
"expect it'll be about the same if not worse'
Ohhh Lucky me!
So here I'm getting ready in a few hours for early morning surgery again the nurse called last night to tell me it was bumped up to 6:30-7am! and to be there an hour early.
These people just don't get it, I have sleep apnea, don't sleep well, can't use the equipment, am a night person NOT a morning person! I have kids that need to get off to school!
I took the pain meds for about a good 3 weeks before I could go completely without it and tolerate the pain!!
I had such a crazy couple weeks, being ill, sick kids, pre-op appointments, 2 trips to the dealership 1/2 hour away for transmission problems still not fixed waiting for parts to come in (mind you my car is a 2005!), a friend passed away Monday morning from cancer which we thought she'd hang on through the holidays, we've spent alot of time together being sick and in/out of the hospital, having treatments, etc. So I cooked alot for her family! (pork roast, 1/2 ham, meatballs, sausages, chicken, wingettes, 4 lbs salad, veggies, chicken ceaser salad, cookies, brownies, muffins, breads, sauce, cheeses, etc. Can't even remember what else......
My neighbor and friend had surgery on Monday (polops removed and trec too) ( she also has laryaxic cancer, which I've tried to help them out as much as possible as well).
My washer broke Monday afternoon and isn't spinning or agitating! I did mangae to get my Dh and children together to a photographer for some pictures that were long over due!
Hmm needles to say I recently started on Christmas shopping, neglected knitting gifts and other projects. Cleaned house, grocery shopped , delivered foods, attended 1 party, 3 loads of laundry at a laundry mat!, striped beds, PO runs, gift shopping & wrapping, etc.
Next up Surgery in the next few hours, home with kids, DH at work, tomorrow night wake, Saturday morning Funeral, Saturday company Holiday dinner party, Sunday church which I'm a Eucharist minister and money collector, then my daughter has religious education, then I get to rest up..
Looks like my recovering will have to wait until next week! YIKES!
I sure hope I'm not totally back & blue. Last time was minor but if this is worse I'm sure the bruising will be too! Lots of pain meds and make up this weekend I guess! Good thing Dh will be doing the driving & cooking (or take out)
hmm anything that can go wrong should ASAP!! Bring it on!!
LOL Have to have a little humor! Helps to get through it!
Looks like I may have to wrap a few IOU's....
So what's next??
Now 2 weeks ago I had another follow up appointment and I mentioned how I've been diagnosed with the sleep apnea and had 2 sleep labs and 2 studies with different equipment and can't seem to breathe through those masks.
Well he reads my chart as we're talking and
'Ohh I know why!!'
hmm I don't like the sounds of that!
'WE didn't finish your original surgery in August!'
'What! WHY?!' I blurted out!
'Well it was so complex and took so long, we had you under to long and weren't able to finish'
What? How?
'but we'll fix it right away for you'
"expect it'll be about the same if not worse'
Ohhh Lucky me!
So here I'm getting ready in a few hours for early morning surgery again the nurse called last night to tell me it was bumped up to 6:30-7am! and to be there an hour early.
These people just don't get it, I have sleep apnea, don't sleep well, can't use the equipment, am a night person NOT a morning person! I have kids that need to get off to school!
I took the pain meds for about a good 3 weeks before I could go completely without it and tolerate the pain!!
I had such a crazy couple weeks, being ill, sick kids, pre-op appointments, 2 trips to the dealership 1/2 hour away for transmission problems still not fixed waiting for parts to come in (mind you my car is a 2005!), a friend passed away Monday morning from cancer which we thought she'd hang on through the holidays, we've spent alot of time together being sick and in/out of the hospital, having treatments, etc. So I cooked alot for her family! (pork roast, 1/2 ham, meatballs, sausages, chicken, wingettes, 4 lbs salad, veggies, chicken ceaser salad, cookies, brownies, muffins, breads, sauce, cheeses, etc. Can't even remember what else......
My neighbor and friend had surgery on Monday (polops removed and trec too) ( she also has laryaxic cancer, which I've tried to help them out as much as possible as well).
My washer broke Monday afternoon and isn't spinning or agitating! I did mangae to get my Dh and children together to a photographer for some pictures that were long over due!
Hmm needles to say I recently started on Christmas shopping, neglected knitting gifts and other projects. Cleaned house, grocery shopped , delivered foods, attended 1 party, 3 loads of laundry at a laundry mat!, striped beds, PO runs, gift shopping & wrapping, etc.
Next up Surgery in the next few hours, home with kids, DH at work, tomorrow night wake, Saturday morning Funeral, Saturday company Holiday dinner party, Sunday church which I'm a Eucharist minister and money collector, then my daughter has religious education, then I get to rest up..
Looks like my recovering will have to wait until next week! YIKES!
I sure hope I'm not totally back & blue. Last time was minor but if this is worse I'm sure the bruising will be too! Lots of pain meds and make up this weekend I guess! Good thing Dh will be doing the driving & cooking (or take out)
hmm anything that can go wrong should ASAP!! Bring it on!!
LOL Have to have a little humor! Helps to get through it!
Looks like I may have to wrap a few IOU's....
So what's next??
Tuesday, November 07, 2006
Sick Child!
Well I've been so behind on emails and blogging.. Last week my son just dropped on the floor and out cold?? He scared the begeggs out of me!! He had a fever over just all of a sudden no warning, no symptoms, fine one minute and the next total larthargic and not responding.. I rushed him up to the hospital of course, not thinking of anything else the poor little guy hasn't been ill or feverish in 5 years since he was an infant..
After several tests , they found he has pneumonia (both lungs) Never in a million years would we have known and he's also asthmatic and hasn't had a flare up of it for a few weeks.. Must've been the quiet before the storm.. So the past 5 or 6 days has been a bit crazy I did manage to finish more socks...
Here's a picture of my latest design

and a little closer view but not the whole pattern just a sneak peak..

this pattern will be included in the up coming book..
After several tests , they found he has pneumonia (both lungs) Never in a million years would we have known and he's also asthmatic and hasn't had a flare up of it for a few weeks.. Must've been the quiet before the storm.. So the past 5 or 6 days has been a bit crazy I did manage to finish more socks...
Here's a picture of my latest design

and a little closer view but not the whole pattern just a sneak peak..

this pattern will be included in the up coming book..
Monday, August 21, 2006
My Family is Back
they brought me back this......

It's cool purple red and yellow inside... Alot of my mugs get stained inside hard to scrub them out too! I hate it even though they are really clean they don't look it inside. SO a new one is good ;o{}
and my MIL sent this for me which I alreay have 2 on the fireplace she gave me for Christmas last year. (the one on the right) hmmmm

Could this be some sort of a sign or what?
My kids have a wrapped present for me to for my upcoming birthday in Sept. but it's yarn, I asked her to pick up some CTH at her LYS because I wasn't coming out this time. Why wrap it for my birthday? I even told her to grab the cash from DH? Odd but since I'm not in dire need of it I;ll wait to open it....so I told the kids to hide it so no picture right now.. sorry. ;o(
DR called me again this afternoon to check on me, how sweet, yeah right he's going to scrap me nose again in the morning, suggest that I may want to take a couple pain pills before coming in. Isn't that nice of him... oh and he'll numb it ALOT too! (then I'll beheading to my regular infusion treatment of remicade which I'm a couple weeks late because of this surgery. So ought to be fun! NOT! He did say that this is a very slow healing process and that I should start to slowly feel better this week, So I guess I should be sort of happ to report that I'm slowly feeling better? OK A little better but not to much so don't jump for joy just yet... Tomorrow will set me back a couple days again! I certianly will enjoy today and tonight sleeping a little better then the next few days.
Back to laying down knitting, have learned that I can only do mindless type of kniting while laying down..Don't suggest anything fancy thats for sure..

It's cool purple red and yellow inside... Alot of my mugs get stained inside hard to scrub them out too! I hate it even though they are really clean they don't look it inside. SO a new one is good ;o{}
and my MIL sent this for me which I alreay have 2 on the fireplace she gave me for Christmas last year. (the one on the right) hmmmm

Could this be some sort of a sign or what?
My kids have a wrapped present for me to for my upcoming birthday in Sept. but it's yarn, I asked her to pick up some CTH at her LYS because I wasn't coming out this time. Why wrap it for my birthday? I even told her to grab the cash from DH? Odd but since I'm not in dire need of it I;ll wait to open it....so I told the kids to hide it so no picture right now.. sorry. ;o(
DR called me again this afternoon to check on me, how sweet, yeah right he's going to scrap me nose again in the morning, suggest that I may want to take a couple pain pills before coming in. Isn't that nice of him... oh and he'll numb it ALOT too! (then I'll beheading to my regular infusion treatment of remicade which I'm a couple weeks late because of this surgery. So ought to be fun! NOT! He did say that this is a very slow healing process and that I should start to slowly feel better this week, So I guess I should be sort of happ to report that I'm slowly feeling better? OK A little better but not to much so don't jump for joy just yet... Tomorrow will set me back a couple days again! I certianly will enjoy today and tonight sleeping a little better then the next few days.
Back to laying down knitting, have learned that I can only do mindless type of kniting while laying down..Don't suggest anything fancy thats for sure..
Sunday, August 13, 2006
Not a Good Day!
not having much fun this weekend at all but the mail carrier was so sweet to bring my mail to my door for me yesterday afternoon and ask how I was doing. She left me a couple good things besides bills.
I nice suprise package from Mandy arrived with a couple sets of stitch markers

It was such a nice suprise lifting my spirits getting goodies in the mail!
Thank you very much!
Then CurlyTop my SP7 from the knittyboards had sent me a link to a sale of Yixing teapot.. I just couldn't resist ordering one and it arrived very quickly too!
First this is the gorgeous fabric box is was packed inside...

ta da! Here's the Yixing Teapot!

All handpainted outside, the picture really doesn't do it any justice
To miserable today back to my pillows and blankets. More updates tomorrow after I see the DR again.
I nice suprise package from Mandy arrived with a couple sets of stitch markers

It was such a nice suprise lifting my spirits getting goodies in the mail!
Thank you very much!
Then CurlyTop my SP7 from the knittyboards had sent me a link to a sale of Yixing teapot.. I just couldn't resist ordering one and it arrived very quickly too!
First this is the gorgeous fabric box is was packed inside...

ta da! Here's the Yixing Teapot!

All handpainted outside, the picture really doesn't do it any justice
To miserable today back to my pillows and blankets. More updates tomorrow after I see the DR again.
Saturday, August 12, 2006
Home After Surgery
Well surgery seem to go well, there was more stuff they had to do with the sinuses then they expected after they got in there. I've had chronic infections for well over a year closer to 2 years anyway, both sides were divated to the point that all the sockets, pores in all the sinus were all cloged up and full of fluid. They had to clean and clear them all out. so it was a FULL cleaning out from what I hear. I haven't been able to smell things in who knows how long. This surgery suppose to fix that but I can't breathe at all now except through my mouth!I have 2 splints mini ice packs and lots of packing inside, my face is swollen, bright red I can't breathe so no pictures....ewwww! Since I been home my nose has been very bloody, so much for the oozing they said to expect it's pouring like a waterfall! I had to call the DR twice, he wanted me to pack antibiotic gel with cotton balls to help with that, second call he wanted me to use hydrogen proxide on q-tips to help clean the blood and get it to start clotting or he wants to see me. I do have a bleeding problem, but they never told me how much blood they'd be!! It's slowed done this morning but then starts again but as as bad as it has.. So this is a good thing, right? The surgery wasn't so bad really it's the aftercare and the next 2 weeks the DR said won't be very pleasant the worst will be his office visits to clean my nose, change the packing and stuff!! YUK!!! I won't give details on those experiences I'm certainly NOT looking forward to them either! ohh the pressure is bad today and my face hurts! other then that it's a bit difficult to sit and do things, can't lay down too much post nasel drip. The gagging and sore throat is awful! I can't sit at the computer long hurts my head. so back to my 6 pillows and blanket
before I go
I do have some kitty knitting updates for yous though. remember the sock I frogged with the new Opal Peddicoat. The kitty was helping with the kniting with it and
she finished a test sock for someone. Was going to call it Soapnuts but things more maybe mixed nuts....She did a wonderful job and it fit well! ;o) What you think?



Then started a doily but not sure how and what and it's curling on me so looks like to the kitty it will go. This shows better on the curling

but this is more accurate with the color

Maybe I can try some spinning today and see what happens with that...can't frog spinning....LOL
before I go
I do have some kitty knitting updates for yous though. remember the sock I frogged with the new Opal Peddicoat. The kitty was helping with the kniting with it and
she finished a test sock for someone. Was going to call it Soapnuts but things more maybe mixed nuts....She did a wonderful job and it fit well! ;o) What you think?



Then started a doily but not sure how and what and it's curling on me so looks like to the kitty it will go. This shows better on the curling

but this is more accurate with the color

Maybe I can try some spinning today and see what happens with that...can't frog spinning....LOL
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