Very Exciting News

For my cousin and his family this week!
Anyone recognize this bus??


or perhaps this limo? look familiar at all? (you can see the pink coat reflection in the window, thats my little girl standing next to me, she's waiting to run between the camera crews.........We've been dodging them all the time, my son doesn't like them)

see everyone in the blue shirts? (Hint! Hint!!) I have one now too!! ;o))

Getting ready to 'MOVE THAT BUS!!!'

'TODAY WITH ABC EXTREME MAKEOVER!!'
here's the design team earlier today!
still doing some finishing touches waiting for the family to arrive.
(they were actually laying down sod and painting it at this point and tossing empty boxes out the back of the house and over the back yard fence into neighbors yards....
The house the family won't really be staying in right now either.. They have to wait for the occupancy permit and they also said no one else can go int he house for 2 weeks......Lots of interviews going on and more shots with just the family. Some family members seen some of inside and some of us didn't want to yet....

Lots of penguins and dinosaurs I will tell you.....

here's where the family, workers, volunteers watched on the property while the family was going inside with Ty!! Theres was only 5000 people allowed then they didn't shuttle anyone else in so imagine with all the camera crew, productions workers, etc it was hard to see over everyone with the camera

See the copper trim too... beautiful copper trim around the front door too!




Here's their NEW home! (at the end of the day)



We were very happy to be able to be there for the

'MOVE THAT BUS!!!'


only did that scene about 101 times!!!! lol

Check out the above link click onto the lighthouse and you can view the story of my cousin Paul and his wife and children and then click on the above GALLERY link and it'll bring you to the hundreds of photos from through out the week!


I must tell you all though being there in person is NOTHING compared the the shows highlights that air the night of the show...

Yesterday they finished and reviled a new home in Warwick, RI which isn't to far from us either. So we didn't see much of Ty Pennington this week

Even though I applied for us with my son, it's not very disappointing to see my cousins family was chosen!! very sad story. We were very happy they can be together now and start a new life.

Show due to be aired May 11th season finale!

Quick Update & WIP

Well my son had a long vacation week a couple more seizures, more increases to his meds and has to go back to the hospital for more tests in a couple weeks.
At least this time when I had paged the DR, she said I did the right thing!! He was totally awake this time during the day, face changes and bite so hard he split his lips in a couple spots, he was standing right next to me just biting really hard on his lips! He wouldn't stop just started blankly bleeding which didn't seem to bother him at the time at all.. Luckily no stitches are needed for this one and only last approx. 2 minutes... Not as scary as some...


Getting ready to make some mini sock earrings that will be up for sale shortly. Will psot more details soon.

WIP & updates!

Some progress being done with the sock yarn blanket so far and moving on..

Haven't decided yet on keeping it for my son, raffling or sell it outright....... Any suggestions?

Please contact me for arrangements of your unwanted leftovers, I could also make you mini sock earrings (sterling wires nothing cheap) or something else

Please send me your requests for your unwants that will get all used up for sure!




On the home front. girls are fine but my son had another seizure. Apparently a much longer one during the night but I didn't catch till the end. It was very unusual and different for him too.. 4am in a fetal position covered in urine & stool... Literally a mess! He was so scared and tired.
Dh of course become a DR overnight and said he's fine put him back to bed.....He's standing watch me in the bathroom knee deep in crap.. Duh!! Help me!! Poor kid standing up now sleeping swaying back and forth... I wanted to page the Dr right then and there, but DS was responsive so I didn't think to much let alone half asleep myself......
cleaned up and we went back to sleep for about 3+ hours or so then I paged the DR

Dr called me back right away, after lecturing me about what I should've done differently like give him valium! Call 911 then move him and clean him while waiting for assistance... and wy I didn't!
Then had me give him more meds and up then again .....so now 2 meds on higher dose and in a couple weeks bring him in for tests.
Geez! They make me feel like I should've known?? Well I didn't and no one ever said do this or that if you see this or find that!! Not to mention like they want someone else to see and not believe me what I witnessed and seen???

Kids move around alot in their sleep sometimes have accidents although extremely unusual for him, he never has. The DR says when someone has a lengthy type and seizing to long bodily fluids come loose....

I've been beating myself up for days now how I failed as a mom, why didn't I know why didn't I call 911 and give him valium.... Shit! I should've taken some valium!! LOL

How does anyone get used to this stuff??!!

thankful it's school vacation this week and we've been having a very laid back week.... He's doing much better not quite himself. I'm a little fearful that going back to school Monday with extra meds he maybe a bit off through the adjustment over the next week or so, but otherwise seems ok not not fully up to par.....
With all these types of meds has been losing he appetite not to mention weight loss 4 .5 lbs since the holidays.... I went back to one of his DRs to asked for ensure for him, our insurance would usually cover it and it's getting expensive at $13 per 6 pk and he likes them enough where he'll drink one for me.. He gets hungry asks for food then sits and looks at it and not hungry.. So If I get him to drink a bottle of ensure it makes me happier in knowing he;s getting some nutrition... The DR agreed and our insurance company denied him, I've appealed it which is a process so int he meantime I asked my own DR and it was approved.. I told him the situation and he wrote it for 200 bottles a month... Which is good and we can get different flavors to try... Only available in Chocolate, Vanilla & strawberry! He's also getting 2 spoonfuls of ice cream every morning and yogurt for mixing meds or opening capsules he can't swallow.... Not sure what else I can do.. I can't force him to eat.... I've never had a problem with him eating until this year with the different and added meds......


dragging out another basket of leftover sock yarns from the bedroom and will be putting all the little squares together and adding as I attach all the 3 together pieces....

Planning on quite weekend and shoveling to keep up with the snow today and tomorrow... Suppose to snow all day today through the night apparently, problem being New England weather is so very unpredictable! earlier in the week in the 50s then below freezing, now snow then probably rain thereafter along with cold temps...Gotta love New England! Especially the Cape! Actually much better then towards Boston area.. We're right on the line.. Either get slammed from coastal issues and goes out to sea.. Which this time is not the case....
Jammy day!

Earl Grey Socks FO

I love these socks!!

Yarn Harlot pattern
used: Yarn Botanika Superwash Merino + Tencel yarn
color: Manhatten from Yarn Botanika
size 1 needles

a perfect fit! a fun simple cable for such a wonderful pair of socks that feel absolutely wonderful!
One of my Sp introduced me to this lovely yarn and is defiantly a treat to work with and wear!

Sock Yarn Blanket WIP

This is going to be a work in progress thats for sure!!
I started my squares with some leftover sock yarn I have, have more then what made the photo this time....There about 2x2
Need a TON of leftover sock yarns if anyone has some they don't' want or need I'll gladly accept them! ;o))) preferably with some wool content for the warmth....but all welcomed thin/thicker types ok too should workout fine.. I'll make it work. Just let me know what you'd like in a fair return when you contact me please! TIA

I figure my son would really enjoy a nice big old blanket to snuggle with when he needs to get pick up and head to the ER in a hurry or just to cuddle.. He loves blankets and wanted me to make him a fish blanket with different colored fish, but I thought since I'd have to buy so many of the same brand and weight yarn and I had all these sock yarn leftovers that I'd compromise with him and do this this instead.. I sure need a TON of leftover sock yarns though....


so off to look for some deals.. I found on Etsy at Karen's Heavenly Creations
a variety of different colorways to use too

even these smaller samples as well
so to the swift and ball winder I went
to get these neat cakes to start with


so off to get more squares going

so far I'm just knitting a bunch but will start to put some together soon I'm sure so I'll be less likely to loose or misplace the squares then a piece of fabric right.....

of and with the smaller pieces that don't work out for squares I think I'll start wiping up some earrings like these using stealing silver wire...maybe sell on Etsy too to help fun this WIP....hmm with so many colors what would a nice shade for a border be? err! I'll worry about that later....

Unwinding!

Ok so I'm behind the camera....lol Dh is lurking while our friends are showing us how to play this Singstar on Playstation.....

show offs!! heehee
they really are terrible I picked a hard song for them to sing Destiny's Child Survivor!
there DD gets in too and kicks butt of course!
heeehee dumbfounded a little.....you think....

I did go out and buy Rock Band with the guitar & drums which is hard!! Kids can't do it only the singing part since you don't even have to know the words right or sign good at all just hummmm along and yell into the mic, my little is picking that up very quickly now.....Thats what we can figure out since he doesn't read yet but still the game gives him points for it....lol

Honestly it's ALOT of fun really! A great way to realize stress tension whatever and just simply have some fun and laughs with friends family whatever....It's been great getting the family together a with some friends for a couple hours of laughs.....but warning you can get hooked! LOL

New In Stash

Claudia's Hand Painted yarn in Blue Fields I just couldn't resist.
Found it in my travels.....
My son started with a rash this week so the DRs had to check and re-check and we have to keep a close eye on him this weekend.....
So I splurged a bit and bought Rock Band for PS2 and SingStar, the rock band is hard and the kids can't do that one but they love the SingStar, since it's a huge hit it'll keep them entertained this crappy weekend were suppose to have and I'm even getting hooked on it too...

Hoping to get some knitting time in and work on a few mitered squares with some leftover sock yarn laying around here.. It seems this blanket will take a TON of leftover sock yarns if anyone has any they'd like to get rid of feel free to contact me I'd be happy to take them off your hands, colors don't matter but would like to have wool content for the warmth.

update things looking up for now & WIPs

Even though they canceled my son's procedure over a week ago our visit with the hospital yesterday went well....Good news... He's been seizure free since being on this new med and starting the second one Saturday morning I didn't want to today or tomorrow because I really need to have him home so I can watch and see the effects of it before his going into school.
His seizure monitor went off once last night around 3:45am but he seemed to be fine could be just a tiny episode but nothing that concerned me really. another scan & high resolution MRI will be done within a couple months to check the lesions then other then that it's all okay for now...not in any immediate danger and from now on instead of focusing on the data well be focusing on him and his symptoms..counting his migraines and such...

Dusted off some WIPS and my needles....
so onto polishing the needles.....

got a little progress on my Ombre Alpaca Blanket
so soft cuddle and warm.....trying to do a few rows each night which can account for a couple small mistakes....(OPPS oh well who will know right).....but life doesn't always allow for it....



then working on Kaibashira which has been another severely neglected WIP kinda sleeping at the bottom of a basket







This is like the best invention ever no not salad tongs...........

for making the perfect snowballs!
now that our foot+ of snow is just about gone and icy I can't play.........;o(

FO

My basic socks are finally finished. Geez... Not knitting for so long, it felt weird at first but happily to report picked it up like riding a bike.....
Knit Picks merino sock yarn in Spring Prairie


still have lots of WIP top get to this one first because I didn't have to figure out where I left off....piece of cake...
thinking of using up some sock scraps into a blanket too.....Any ideas?
Hmm mitered squares which would take a TON of them, of plain garter stitch using one odd ball after another..

Updates with my son.. well thats a whole other issue. I was at the school and I was inquiring as to why the teacher isn't wiring in my sons notebook daily. (she only agreed to write positive things and nothing else?? which is stuff like, he shared nicely during choice time or he worked hard on project time or good listening at lesson time, etc.)) Well, the principal pulled her from class to speak with me since her last entry was 11/15/07 and I'm thinking she's had nothing positive to say about him since minus his absences and holiday break of course....
I also informed the school nurse (following the protocol I was told) that the medical team of DRS has requested a detail log on not only medical issues but behavioral as well.
So the teacher comes to the nurses office to speak with me. I had the nurse back me up on this subject. I asked her, first she says she's forgot, oh but he has mentioned it to me, and I haven't had time. It's required but also was agreed upon during team meetings at the school which she was present and had alot to say about it too..
Excuses I swear! So She asked about he's meds and what about his ADD...Informed me that his attention and inattention and behaviors she doesn't deal just ignores him and has been since school resumes Jan 2nd!!
I also informed her that the DRs agree he should be treated with med for ADD but can NOT at this point because of his health and new medicines and issues going on in the brain until they can get those better under control he can not be treated for the ADD....
He's NOT even that bad either if you talk with him and explain things to him he will cooperate and be very sweet!
She stands their and continues to tell me the same thing and still refuses to comply with the dr & nurse about the communication log
Then I had to interrupt her and ask then whats going on in class then??
Her response is that she she ignores him and his behaviors and just goes on with ignoring him?
So then what are you teaching him?!
She seen the kids coming in from the playground and left me standing there with the nurse..Nothing!
Don't they have to deal with him??
Why avoid whatever is going on? I don't' understand I'm not there so I don't' know

I spoke briefly to his psychologist and he suggests I call the state on this??! I don't' know I'm hesitant.. We are going back to the hospital and seeing the neurologist tomorrow who want the responsibility of all issues and the responsibility of treating all issues..


So yeah why not avoid confrontations with him teach him that he can do or say whatever he wants with no consequences.. ohh Great! What is everyone teaching him and what is this going to be like? With me he's better but probably because he's such a suck up and mommy's boy too!

Make Your Sweaters Fit Perfectly!

Cheryl Brunette's Sweater 101

It tells you how to fit several generic body sizes at his or her gauge.

But what do you do if you have a non-generic body, Brand Q yarn, and a relaxed gauge? Consulting Sweater 101 is an attractive option.

• 
  
• make a proper gauge swatch and measure it with an accuracy worthy of NASA.
• know the three sources of measurements for sizing a sweater.
• create a simple-to-follow “Picture Pattern.”
• easily chart a set-in sleeve cap.
• have the tools to organize your knitting information.
• use two simple math skills to save time.
• adapt a pattern to your yarn, gauge and body size.
• change necklines and collars on any sweater.
• fall in love with any yarn and buy it knowing you can make your own pattern for it.

Appendix A which is a mini-reference book with schematics that show the measurements for 30 standard sizes, child’s size 6 months to men’s size 50, in 3 basic styles.

and so much more!


I bought this and it's a well written for people of all skills! Great to keep around for reference for the more experienced knitters and a GREAT tool for the beginners and intermediate!
Great reviews so far!!

It's more like a workshop then a book

click on my sidebar for direct link to purchase!

Sorry to see SP11 End!

I opened my package that has been sitting patiently waiting for me.
My SP11 was so very sweet and thoughtful. She really had to put alot into this package thats for sure! Being new to the swaps I must tell you She's just WONDERFUL!
Here's a closer view of the suitcase, very ingenious! Very pretty design

Here's what was inside the package, a wrapped gift and a small suitcase!




the wrapped present was a great hard cover book on weaving. Deborah Chandler's revised edition of Learning to Weave. I've been trying for so long to get the perfect warp.. Hopefully now I'll understand and do better. Can't forget the Green tree Pepps! ;o)
a bag of Premium Steap Black tea which I can't wait to try... and isn't the Penguin Popper just adorable!These stitch markers are just the cutest.. I adore Penguins I love these! The first has a claw clip on it, I think it's used for rows counts
Yes there's more 2 skeins of Koigu KPPPM color P830 a full range of colors muted together. I bet this will knit up just beautifully!
a skein of Lang Jawoll color which I really like this yarn. I've used Lang yarn with great sucess for long wearing socks (of course)..;o)
another great choice in yarns Schoeller Stahl Sockina Cotton
Perfect choice all colors I really like too!
Thank you so very much for making the end of the swap such fun! I really appreciate the timing and something good to come home to waiting for me. Andrea you've been WONDERFUL! Going to catch up with your blog since I never figured out who you were, and you've seen on me Ravelry.. WOW! I had no idea....
Thank you for the pretty card too!
Much appreciate EVERYTHING and your patience with me too! Your a sweetheart for sure!

More Disturbing News

We got some very disturbing news for Christmas and just want some time spent together at home right now between the next visits and series of procedures and stuff with my son.
The Drs think he's having a series of TIA's and that they also think there on the right path direction of more answers. They put together 4 & 5 opinions and more Drs working together from the Boston Area From Children's Hospital, Mass General & the Brigham. Which on Christmas Eve came into my sons room with ALOT to tell and not talk about and no straight answers. From what they are speculating is that he's having some minor episodes of Central Sleep apnea being caused by lesions in his brain and/or possible tumor they can't yet locate which are from TIA's also known more commonly as mini strokes that you recover very quickly from but the technical term is
called transient ischemic attack also maybe accountable for some seizures and can be associated with epilepsy as well.
Therefore all MRIS, CTs, Xrays and other tests haven't picked them up as any structural damage. They happy with these results which gives them more reasons to look further into the brain function. They also found some dysplasia (isn't this abnormal cancerous type cells?)as well and are working on bringing him back ASAP into the hospital again for more diagnose reasoning testing and PET scan. They decided it's safe for me to bring him home while they set all this stuff up for a long term admission and started him on some newer drug that have some serious side effects. They told me about 20% of children on it develop a fatal rash and any skin changes at all to being him back....can't be late or miss 2 does would have to be seen, can cause bone marrow separation, also dizziness, drowsiness & blurred vision, headaches.. These are most common. They do think it's be more beneficial to have him on these types of drugs then nothing.
Some sections of his brain didn't develop properly, may have happened while in utero but nothing I did or didn't do, just happens and more common with preemies.
this is not benign epilepsy anymore, he wont outgrow it, is considered disabled and paperwork was summited to social security and he's eligible for past payments as well, but we wont get because gross household income to much were not living in total poverty, just on the poor side. whole other issue..
It's permanent , not fixable, curable or possible not operable.
So this horrible drug is suppose to help keep his brain at bay for a while. They don't' know the long term effects.
I'm suppose to be happy with this? this is what the neurologist call good news and heading on the right track . They may not ever be able to locate it on any of these tests/procedures they have to put my little guy through.
Oh and it's also goes together with ADD & low end Autism as well. (which they like to get him on some medication for that too but not until after the next admission and series of next steps are done first because other drugs maybe added Which they suspect he also has and accountable for lots of his temperaments/behavior issues... (hmm not because of everything they are torturing him and not many straight answers!!!)
oh and he has RLS to Rest Leg Syndrome. Unusual for a little kid.

I do one one thing right now, in all my years of living with a chronic illnesses and 3 children and lots of specialists! Neurologist have to be the worst with information and helping, explanations, answers reasons anything!

To me hearing all this is that they still basically don't' know and not sure suspect and guessing just isn't exceptable I want answers and want to let me little boy just be a happy kid and be a kid... I also want to know what this means for him which they can't tell me that either but will keep me informed step by step and will be in better communication.....????

I have so many questions and they can't give me direct and straight answers?? I just don't understand.
sorry wish I had better news and answers for everyone!
Him keep banging his head is OK just avoid trauma to his head.....hmm him banging could be just that it makes him feel better, jogging a mm sized thing(s) also make it harder for them to locate and try to get to it to or treat it....
Not sure and don't' want to jinks us here but I hope this is the last of bad news for this year!
I know we have a long way to go and very long road ahead.....the past 10 months haven't been very much fun either to get tot his point...

Some good news I have a package I need to open from someone! Along with a stack of bills and junk mail! Hmm Where to start???
oh yes Santa did visit us in the hospital....It was nice not the same but nice under the circumstances.
He's a little happier, holding up quite well through all of it and being so brave I'm very proud of him!! He looks and appears to be a typical 6 year old boy whose on the bit of a small size then most but good! He has a few cards to open from his class & teachers... How sweet! ;o))

Thank you!
Hope everyone enjoyed the holidays and Best wishes for the New year!

Home and back to hospital

My son's surgery went well, he stayed in the hospital a couple days.. Good thing we had a HUGE storm!! Only thing ran out of cash!! only the coffee shop (Dunkin Donuts would take debit card!) They ran out of foods by the next morning too....and splenda...
So my sons beens home for a couple days, getting HIGH temps and bad pain stomach cramps must be an intestinal thing... chalking that up to catching something most likely viral..so of course slowing him down healing wise..
The Neurologists called me 3 times today.. They finally received faxes with some new data from studies last week. They discussed it and started going over and called me 3 times!! They say that the new data regarding mini stokes causing seizures and lesions that he may NOT have another seizure disorder and want him to come in first thing to see another specialist up to Boston! (when we get there to have the DR page the neurologist to do a conference call while were there)
They are extremely concerned about these diagnosis pertaining to the sleep observation, said they very harsh and serious conditions not to mention rare in an Adult let alone a 6 year old...
The Neurologist did say I should be able to take him back home, but she is arranging a plane longer stay in the hospital ASAP!!! She's on rounds in the inpatient unit for a couple weeks and would like him to be there with more monitors 24/7 for a long stay??? I guess it takes a few days to set up with the observation inpatient unit and getting a bed...
Theres a good chance we'll be staying at the hospital through the holidays...
I just really prefer that the figure this out fix him treat him do whatever! They did also tell me YES in fact with this happening if it's really if and something else isn't being overlooked then potentially he won't ever be able to drive or work!! Don't think he'll out grow it and just the beginning on a LONG road for all of us! the longer it takes and he develops more scaring on the rain.. NOT GOOD!!
Just beside myself tearing us all up! DH & I fighting really badly! Wants me to stop babying him! OH NO!! I'm not! He's in denial!
So much for baking & cooking! Finishing shopping, wrapping of anything!I just want to curl up in a ball and cry!

Sock Wars & updates

Sorry it took so long to get the sock wars photos up and updates. It's only taken me 2-3 days to do this post...

there thick & comfey

First year I could get my son to get close enough to Santa for a picture


We've had alot happened in the past week or so now .
My son woke up one night and was scared, couldn't speak or get any air in to breathe.
I tried everything I had for emergency medicines waiting for the DR to call and he was getting worse so I didn't wait to ran him to the closest local ER.
They took us in immediately when they saw us walk in and me carrying him.
They first found out they couldn't see down his throat it was closed and swollen. Not tonsils either. Stenosis of his upper airway. Low stats, heart rate under 50 and this wasn't an asthma attack!!
kept him on monitors with low O2s, etc. gave him high doses of steriods to get the swelling down right away,etc.
They did a sleep observation overnight and found out he's having clusters of mini stokes, causing seizures and lesions on the lower part of his brain. The lesions are not sending the proper signals to his body to tell him he needs to breathe when he's sleeping. We're so very proud of him, being such a big brave boy through everything!

They also gave him a couple new diagnosis's. The said he has centralized apneas and RLS which is rare in adults let alone children. Which need to get treated immediately or corrected up to the neurologists. First they need to do a surgery tomorrow morning to help his breathing issues first (of a couple or so) and fix the stenosis of his trek. Then afterwards healing time before the next route.
The DR thinks that all of this is contributing to his learning issues and behaviors issues and his IEP at school. They still think he may be somewhat high end Autism.
I had to get a seizure monitor for home to monitor his o2 and movements during the night.
So I haven't be online much nor will I be in the coming weeks.
he's out of school for a while hopefully he'll be ok to go back in Jan.
I can't enough concentrate long enough t relax and do any knitting or anything really.



We're not even thinking of the holidays either.
They did have their holiday pageant and my son was so scared and looked as though he was going to cry on the stage!! Beforehand he was singing Jingle bells and so excited...(he doesn't do well in crowds, just doesn't like crowds or loud noises and music, he never has)



then The principal and vice principal took my kids to a holiday concert with a couple of their friends this past weekend. Kinda expensive to.. the ticket stubs were $45 per ticket! YIKES! (my son wouldn't get in the pictures at the concert hall downtown)
I'm just glad he got to participate in some holiday festivies. He's going to miss a few but its ok as long as he gets well soon!

Thanks for the notes and sorry it took me so long to send out updates!
Thanks so much for all the thoughts & prayers & for all the support!

Hope everyone enjoys the holiday season!
Hope to be back soon! (will check emails but can't promise it'll be everyday so please be patient on hearing back from me

Yarn Porn & Brief updates & Fos

Update of Sock Wars is that I've sent off my socks and killed and have received mine afterwards. Will upload photos over the weekend of the ones I've received.

Here's some photos of the ones I sent out.... with my little baby gnome I made as well....

I use a gorgeous very soft luxury Alpaca yarn for a little luxury for my targets feet!



Worked out a swap for some Fleece Artist Wool/silk & sea silk sock yarns


since there was no labels I'm sure sure which is which exactly but some lovely colorways thats for sure


quick update on my son is we still have no answers the DRs haven't figured it out exactly and don't' know whats wrong they do recognize something but want a different opinion from other DRs at a different Boston Area Hospital besides Children's Hospital... Errrr! So very frustrating in the meantime we've been weaning him off Meds and dealing....

Birthday & FO & crisis's

Inbetween small crisis's my little one had his 6th birthday
He also insisted on a 3D baseball cake!
That he got I managed to jungle that in somehow, don't' ask I have no idea.
I don't' even remember doing it really..


2 days after his party he had a very lengthy type of generalized type of seizure, once I realized what was going on and had 2 drs on the phone, yelled for a neighbor to help and had to get rid of all the kids that were in my backyard, call 911 and stay with the DR s on the phone telling me what to do and not do... while waiting for 911 response to show up. When the fire Dept & ENT showed up he was just coming out of it and becoming semi cautious, thank God it was well into 10-15 minutes by then at least! It seemed like ALOT longer....
the DR also sent him home with an EEG attached to him for the entire week...He's had way to much seizure activity and the machines battery packs kept running out within hours.. I guess apparently he's been having clusters of them 50-100 per day which we have no way of catching.. How could anyone.. (still beating myself about that one)\
I did managed to get these socks done for him, which HE LOVES! He wants to wear them all the time. Pattern from Vintage Socks Child's French Sock, I used Trekking XXL size 0 needles.
Now he cant' wear socks without shoes on at all because it can create static electricity and give his brain shocks...

The DRs don't' understand and seem to think it's another form of epilepsy then originally diagnosed with back in March of this year.. It's definitely not an easy one to deal with and also effecting his entire brain now not just partial as I was told in the past.
Not sure how to treat yet eitehr.. I'm so frustrated and have had to deal with the school NOT meeting his needs and saying he shouldn't be in school, even though the DR wants him to be.. So The superintendent has allowed me to be his shadow in school because they don't want the responsibility or liability of him while in school, so now I have no time in my life for anything else...

EDITED TO ADD:on top of this on Friday late morning I had to leave the school for another emergency with my niece She went in for a routine surgery like I had last year on sinus's and deviations of her nose.. well after they brought her to the OR her mom left for a while, the DR said about 4 hours or so.. We never expected after she was put under for anything to go wrong..Well after about 1/2hour to an hour into getting her asleep and preped in the OR,etc. They tried several times to incubate her but totally unsuccessfully. Then did an immediate pedi scope etc.. (she's 24 y/o) and still unsuccessful so they DR couldn't go forward with her surgery as planned and called immediately.. Well they believe that her tracheal is smaller then the inside of a straw..Normally it should be about the size of your thumb... Extremely narrow and very serious., She was moved to the ICU unit which I seen her between leaving the OR recovery room and before getting up to the ICU.. I walked with her, she tried to talk to ask about my son... She's so sweet but I was more concerned about her at the moment..
I'm helping her mom to get her up to the Boston area hospitals and the appropriate care and treatment plan. Possible totally reconstructible surgery with prosthetic trachea..or whatever they recommend but most likely not a good candidate for any stents ..All her life the DR keeps getting on her about her breathing that it's Asthma.. Now the hosptial is convinced that she probably doesn't have asthma yes on allergies ...
Also that anyone in the family that has been diagnosed with Asthma, premature at birth, underdeveloped lungs at birth, hmm oh and RSV an an infant as well would all be reason for this problem or even a cogentital birth defect.

Hmm yep my son will get reevaluated as soon as we get through the next few weeks with the seizures again and back to a normal dull roar around here. He was a premie, RSV, immature lungs at 40% at birth, has moderate to sever asthma...

She's out of ICU and home now on all liquid medications, including antibiotics pending further treatment plan until then she get afford to get ill.. Tough time of year with that one...


All and all Today has been a better day for all of the family.. Now to educate ourselves before all the appointments & meetings start up this week.

WIPs & TIPs (thoughts in progress)

I went to start or swatch if you will with the pink yarn for the Campanula socks and this yarn just isn't going to work out.. So back to dive into stash to find something or maybe a totally different color who knows.. hibernating now....


So I proceeded to work on a sleeve for the Everyday Cardigan using Lane Cervinia Londra (alpaca/wool/acrylic blend)This one will most likely be a gift because I have a different yarn in mind for one for myself....

Breast Cancer Awareness Month! Join the KAL

Of course most of you know that October is Breast Cancer Awareness Month.
Stop by and Join the KAL/Cause for Campanula for the Cure if you haven't already

I have't been diagnosed with breast cancer but was 18 years ago with cervical cancer,a few surgeries, a hysterectomy and minor set backs, very lumpy & fast growing breasts these last 5 years which had a large recent reduction (14lbs!) but am finally totally cured and finally cancer free for 5 YEARS next month!! WoooHoo!! Definitely a reason to celebrate for sure!!

I found this beautiful pink yarn, the perfect pink shade too I thought

what do you think?/ 500 yards and ohhh so very soft!
I need to cast on very soon!! Sock Wars and Tea Swap 4 is coming soon!

Hope to see some familiar faces over at Campanula for the Cure!!

Happy Knitting and Have a Enjoy the LONG weekend!