My son's surgery went well, he stayed in the hospital a couple days.. Good thing we had a HUGE storm!! Only thing ran out of cash!! only the coffee shop (Dunkin Donuts would take debit card!) They ran out of foods by the next morning too....and splenda...
So my sons beens home for a couple days, getting HIGH temps and bad pain stomach cramps must be an intestinal thing... chalking that up to catching something most likely viral..so of course slowing him down healing wise..
The Neurologists called me 3 times today.. They finally received faxes with some new data from studies last week. They discussed it and started going over and called me 3 times!! They say that the new data regarding mini stokes causing seizures and lesions that he may NOT have another seizure disorder and want him to come in first thing to see another specialist up to Boston! (when we get there to have the DR page the neurologist to do a conference call while were there)
They are extremely concerned about these diagnosis pertaining to the sleep observation, said they very harsh and serious conditions not to mention rare in an Adult let alone a 6 year old...
The Neurologist did say I should be able to take him back home, but she is arranging a plane longer stay in the hospital ASAP!!! She's on rounds in the inpatient unit for a couple weeks and would like him to be there with more monitors 24/7 for a long stay??? I guess it takes a few days to set up with the observation inpatient unit and getting a bed...
Theres a good chance we'll be staying at the hospital through the holidays...
I just really prefer that the figure this out fix him treat him do whatever! They did also tell me YES in fact with this happening if it's really if and something else isn't being overlooked then potentially he won't ever be able to drive or work!! Don't think he'll out grow it and just the beginning on a LONG road for all of us! the longer it takes and he develops more scaring on the rain.. NOT GOOD!!
Just beside myself tearing us all up! DH & I fighting really badly! Wants me to stop babying him! OH NO!! I'm not! He's in denial!
So much for baking & cooking! Finishing shopping, wrapping of anything!I just want to curl up in a ball and cry!
4 comments:
woah - think of yourself first. You'll be no good to your son if you're frazzled from dealing with the woman next door. Pooch and I go through episodes of arguing. Could you draw up some guidelines to get you trhough the next few weeks to reduce general stress? Don't laugh but the book 'Men are from mars...' is actually really good and if you have a lot of hospital time coming it might be good to have something to read. Get it as an audio book and knit at the same time. Audible.com is great for audio books. Phew, enough advice? The rest is all hugs x
Aw honey you certainly have enough to deal with without taking on your neighbour's problems on your own too, do you have any other neighbours who are concerned enough to help her out and share the burden?
Take care of yourself and your own first! Don't feel horrible. She does have family -- they should be the ones feeling horrible.
Sending warm thoughts and hugs your way!
Time to take care of yourself and your son and let everything else go. You don't need all this drama right now.
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